Diagnosis and Treatment of Patients With Cystic Fibrosis

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)79 enrolled

Overview

This is an omnibus protocol for studying patients with cystic fibrosis. The main purpose of the study is to obtain samples and data collected during standard clinical care for future research to expand knowledge of the natural history, clinical manifestations (phenotypes) and the genetic variants (genotypes) of cystic fibrosis.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Cystic Fibrosis Liver Disease or Abnormalities Diabetes Pancreatic Insufficiency (Exocrine and Endocrine)

Eligibility

Sex: ALLMin age: 4 YearsMax age: 120 Years

Medical Language ↔ Plain English

* INCLUSION CRITERIA * Patients with known or suspected CF and family members of patients with CF. * \>=4 years of age EXCLUSION CRITERIA -Concomitant medical, psychiatric or other problems which might complicate interpretation of studies of CF, or for which we are unable to provide adequate care.

Locations (1)

National Institutes of Health Clinical Center

Bethesda, Maryland, United States

Outcomes

Primary Outcomes

To develop a database and collection of samples obtained from patients with CF during their clinical care to allow for future research

To develop a collection of samples and a database from patients with cystic fibrosis to be used in future research.

Time frame: end of study

Data from ClinicalTrials.gov

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