NF2 Natural History Consortium

House Ear Institute100 enrolled

Overview

OBJECTIVES: I. Define the growth rates and clinical course of NF2-related tumors in patients with neurofibromatosis type 2. Associate growth rate with physical function.

PROTOCOL OUTLINE: Data on the clinical course and growth rate of NF2-related tumors in patients with neurofibromatosis 2. Patients are evaluated each year on a cranial and a spinal MRI, eye tests, hearing tests, quality of life, neurological tests, and physical functioning.

Study Type

OBSERVATIONAL

Enrollment

100

Conditions

Schwannoma, Vestibular Neurofibromatosis 2 Meningioma

Eligibility

Sex: ALLMin age: 5 Years

Medical Language ↔ Plain English

PROTOCOL ENTRY CRITERIA: --Disease Characteristics-- * Diagnosed with neurofibromatosis 2 on or after 01/01/93 * Must meet one of the following conditions: Bilateral vestibular schwannoma OR Family history of neurofibromatosis 2 (first degree family relative) AND Unilateral vestibular schwannoma at under 30 years OR Any 2 of the following: Meningioma Glioma Schwannoma Juvenile posterior subcapsular lenticular opacity/juvenile cortical cataract * No plans to treat vestibular schwannoma in next 12 months --Prior/Concurrent Therapy-- * Not specified --Patient Characteristics-- * Age: 5 and over

Locations (1)

House Ear Institute

Los Angeles, California, United States

Data from ClinicalTrials.gov

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