Amyotrophic Lateral Sclerosis Web Based Patient Care Database: ALSConnection.Org

Forbes Norris MDA/ALS Research Center15,000 enrolled

Overview

The purpose is to collect data for ALS research. The data will be used to learn more about the origin of ALS and to improve quality of care for people with ALS. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research.

Any person who has been diagnosed with ALS by a physician can enroll into this registry. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research. An additional focus of this website will be to educate participating patients and visitors to this site about ongoing ALS research.

Study Type

OBSERVATIONAL

Enrollment

15,000

Conditions

Amyotrophic Lateral Sclerosis

Interventions

ALS RegistryBEHAVIORAL

Eligibility

Sex: ALL

Medical Language ↔ Plain English

Inclusion Criteria: * There are no inclusion and exclusion criteria beyond the fact that a person needs to have ALS in order to enroll.

Locations (1)

Forbes Norris MDA/ALS Center

San Francisco, California, United States

Data from ClinicalTrials.gov

This platform is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional.