Hattie Larlham is a specialized long-term care facility for pediatric and young adult residents who are medically fragile and intellectually disabled, whose daily care is provided by direct care staff, Habilitation Assistants (HA), in conjunction with nurses and other direct care providers. The purpose of this study is to assess the perspectives of HA and parents/legal guardians on end-of-life care in a long-term care facility for pediatric and young adult residents who are medically fragile and intellectually disabled.
Study Type
OBSERVATIONAL
Enrollment
125
3 individual surveys
Focus group discussions facilitated by a psychologist
Hattie Larlham Center for Disabled Children
Mantua, Ohio, United States
Participants' responses to survey questions.
Time frame: Start of Study
Participants' responses to focus group discussions.
Time frame: End of study
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