The purpose of this study is to develop and implement evidence-based and family-oriented support for young carers and their families in Germany. Hypothesis is that families' own support mechanisms, combined with externally provided support that is determined by the families' specific needs, will help to overcome their burden and enable families to live in the way they wish to despite chronic illness. This will lead to a measurable increase in HRQOL of children concerned.
Study Type
INTERVENTIONAL
Allocation
RANDOMIZED
Purpose
SUPPORTIVE_CARE
Masking
SINGLE
Enrollment
150
* professional partners for communication * befriending with other families concerned * information and education (about illness, symptoms, first aid, caring) * free-time activities and time out * homework assistance * administrative advise * support for everyday life
Institute of Nursing Science
Witten, North Rhine-Westphalia, Germany
health-related Quality of Life in children
Time frame: study start and after 5 month of intervention
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