Exploring Stress and Coping Behaviors of the Major Carer Whose Children With Prader-Willi Syndrome

Taichung Veterans General Hospital8 enrolled

Overview

Ask the 4 carers of children with Prader-willi syndrome to disclose their experiences and difficulties for searching better management and intervention

Study Type

OBSERVATIONAL

Enrollment

Conditions

Prader-Willi Syndrome

Interventions

counseling, emotional supportOTHER

emotional supportOTHER

emotional support during the interview

emotional supportOTHER

emotional supporting during the interview

Eligibility

Sex: ALLMin age: 6 YearsMax age: 12 Years

Medical Language ↔ Plain English

Inclusion Criteria: * a person who care and live with children with Prader-Willi syndrome Exclusion Criteria: * siblings or less-contact family * teachers

Locations (1)

Taichung Veterans General Hospital

Taichung, Taiwan

Outcomes

Primary Outcomes

experience

Time frame: one year

Data from ClinicalTrials.gov

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