The aim of this study is to determine the influences of discharge teaching and care coordination on how ready a parent is to take their child home from the hospital after a solid organ (kidney, heart and liver) transplant. This study will also look into how the parent handles coping, utilization of healthcare resources, and parent adjustment 3 weeks after discharge from the hospital.
Parents of children that have received a heart, kidney or liver transplant will be asked to participate in this protocol. Involvement in this study involves completion of questionnaires prior to the child being discharged from the hospital. Three weeks after discharge, there will also be a follow-up phone call to complete more questionnaires. Readiness for hospital discharge is a under-investigated topic in pediatric solid organ transplant patients, despite the increasing number of pediatric patients undergoing transplant surgery. Results from this study will be used to develop an intervention program to promote readiness for hospital discharge in parents of children who receive a solid organ transplant.
Study Type
OBSERVATIONAL
Enrollment
37
Children's Memorial Hospital
Chicago, Illinois, United States
Levine Children's Hospital
Charlotte, North Carolina, United States
Children's Hospital of Wisconsin
Milwaukee, Wisconsin, United States
Determine the influences of care coordination and discharge teaching on readiness for discharge in solid organ transplant recipients
Time frame: 2 years
Determine the relationship of parent readiness for hospital discharge with coping, utilization of healthcare resources, medication adherence, and parent adjustment following hospital discharge
Time frame: 2 years
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