Assessment of Functional Independence and Quality of Life in Adolescents With Spina Bifid

N/AActive Not RecruitingNCT00966927

Azienda USL Reggio Emilia - IRCCS41 enrolled

Overview

The purpose of this study is to investigate the level of functional independence and the quality of life of adolescents and young adults with spina bifid in an Italian population.

We submitted the Quality of Life in spina bifid Questionnaire to subjects who participated in the study and the Spinal Cord Independence Measure to the parents of subjects.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Spinal Dysraphism

Eligibility

Sex: ALLMin age: 14 YearsMax age: 21 Years

Medical Language ↔ Plain English

Inclusion Criteria: * recurrence of clinic control in Unit for Spina Bifid in Parma * 14-21 years old Exclusion Criteria: * subjects unable to understand the items of the questionnaire (mental retardation and need for help at school ) * subjects without any caregiver

Locations (1)

Unit for Care of Spina Bifida

Parma, Parma, Italy

Outcomes

Primary Outcomes

correlation between the quality of life in adolescents and young adults with Spina Bifid and their level of functional independence

Time frame: 5 months

Secondary Outcomes

correlation between functional level of independence and motor level of neurological lesion

Time frame: 5 months

Data from ClinicalTrials.gov

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