Colorectal Cancer Survivors' Needs and Preferences for Survivorship Information

Memorial Sloan Kettering Cancer Center177 enrolled

Overview

We are doing this study to learn more about colon and rectal cancer survivors. We want to know if survivors want more information about life after cancer. Do cancer survivors want to know more about their own cancer? Do cancer survivors want to know about their treatment? Do cancer survivors want to know what health care they should get in the future? We want to know what information to give to cancer survivors when they finish treatment.

Study Type

OBSERVATIONAL

Enrollment

177

Conditions

Colon Cancer Rectal Cancer

Interventions

QuestionnaireBEHAVIORAL

The questionnaire will be administered by telephone and will take approximately 20-30 minutes. The questionnaire will elicit survivor responses along five domains: knowledge about diagnosis and treatment, knowledge about ongoing risks and recommended testing, history of health care utilization since the end of treatment, preferences for relevant information about these topics, and employment after the end of cancer treatment.

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: * 18 years of age or older at diagnosis * Diagnosed with first primary colorectal cancer (stage I-III) * Completed last treatment for colorectal cancer (surgery, chemotherapy, or radiation) at least 6 months and no more than 2 years before the date of study enrollment * Able to speak English, because questionnaire is only available in English * Able to provide informed consent * Received all treatment for colorectal cancer at MSKCC or QCC or, surgical treatment at an outside facility, and all other treatment (chemotherapy or radiation) at MSKCC or QCC Exclusion Criteria: * Undergoing active treatment for colorectal cancer * Diagnosed with metastatic colorectal cancer * Prior history of colorectal or any other cancer (except non-melanoma skin cancer) * Diagnosed with new or recurrent colorectal or other cancer after the primary colorectal cancer diagnosis * Received a survivorship care plan from the treating institution

Locations (2)

Queens Cancer Center of Queens Hospital

Jamaica, New York, United States

Memorial Sloan-Kettering Cancer Center

New York, New York, United States

Outcomes

Primary Outcomes

Assess colorectal cancer survivors' basic knowledge of their own cancer history, including date of diagnosis, stage, and treatments received.