Little is known about the factors that predispose patients to complications after an ileal pouch-anal anastomosis procedure (IPAA). Our goal is to establish a registry that prospectively captures pre- and post-surgical data from participants. Retrospective studies concerning IPAA outcomes and will be conducted using these data.
In order to better understand the long-term outcomes following IPAA, a registry that collects pertinent information about the underlying disease and its treatments and complications in an organized manner must be established. Establishing this Registry will allow us to follow patients who have an IPAA and organize retrospective medical information into a meaningful system.
Study Type
OBSERVATIONAL
Enrollment
936
Boston Medical Center
Boston, Massachusetts, United States
Pouch status: functional pouch or non-functional pouch (diverted or excised)
Participants will be queried once per year as to the status of their intestinal pouch. Patients will have either a functional pouch or a non-functional pouch. A pouch will be considered functional if patient is not temporarily or permanently diverted to an ileostomy.
Time frame: Once per year for duration of the study
Quality of life
Participants will be queried once per year as to their quality of life using the IBDQ-10.
Time frame: Once per year for duration of the study
Health status
Participants will be queried once per year regarding health issues with pouch such as pouchitis, stricture and fistula. Participants will also be asked about presence of co-morbidities such as hypertension, diabetes and arthritis.
Time frame: Once per year for duration of the study
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