The relevance of the study will be in establishing whether Health Related Quality of Life (HRQoL) measures obtained repeatedly during hemophilia care are sensitive to significant changes in health or personal circumstances related to the transition from youth to adulthood. This may support the future use of HRQoL measures as part of routine care in order to identify important changes that are not detectible by other clinical means.
Study Type
OBSERVATIONAL
Enrollment
48
Sick Kids Hospital
Toronto, Ontario, Canada
CHU Sainte-Justine
Montreal, Quebec, Canada
Health Related Quality of Life (HRQoL)
Time frame: Every 6 months over 2 to 3 years
Sensitivity of HRQoL measures to significant life events
Time frame: 3 years
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