The purpose of this study is to examine the impact that serving as a caregiver for a patient undergoing hematopoietic stem cell transplant has on the caregiver. This will include looking at the caregiver's level of burden, depression, anxiety, somatic symptoms, fatigue and overall distress. It will also look at whether caregiver burden leads to an increase in hospitalization and overall outcome.
Study Type
OBSERVATIONAL
Enrollment
100
Northside Hospital
Atlanta, Georgia, United States
Brief Symptom Inventory and Burden Interview
Brief Symptom Inventory (BSI) measures overall distress. Scores can range from 0-72 with the higher score representing a higher level of distress. Each question is 0-4 with 4 being higher levels of distress. Clinically significant level of distress is 25+. Burden Interview is scored on a continuum. No clinically range, but higher scores mean higher feelings of burden. Scores range from 0-88. Time frame: BSI scores and Burden scores were compared in caregivers of HSCT patients at preBMT and post BMT (30 days and 1 year).
Time frame: Baseline, Day 30 & 1 year
Patient Distress, Fatigue & Pain Scores
BSI scale 0-72 with the higher score representing higher distress Brief Fatigue inventory 0-90 with the higher score representing higher fatigue Brief Pain inventory 0-120 with the higher score representing higher pain
Time frame: Baseline, Day 30 & 1 year
Overall Patient Survival
Number of patients who are alive at 1 year
Time frame: Pre-transplant to 1 year post-transplant
Common Characteristics of Caregivers
12 demographic characteristics were collected. If common characteristics were found then it would have been analyzed for correlation with caregiver burden and distress
Time frame: Baseline
Length of Patient Hospitalization
Time frame: pretransplant to 1 year post-transplant
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