Xeroderma Pigmentosum Patient Experiences

Henry Ford Health System15 enrolled

Overview

Xeroderma Pigmentosum (XP) is a rare skin condition that causes extreme sensitivity to the sun and an increased incidence of skin cancers. The purpose of this study is to find out more about XP patient experiences and their quality of life.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Xeroderma Pigmentosum

Interventions

Survey StudyOTHER

Survey regarding quality of life

Eligibility

Sex: ALL

Medical Language ↔ Plain English

Inclusion Criteria: * Confirmed diagnosis of xeroderma pigmentosum * Any age * Access to a public or private computer Exclusion Criteria: * Patients who do not have a confirmed diagnosis of XP * Patients under 18 who do not have a parent/guardian able to read or speak English * Patients who are unable to read or speak English

Locations (1)

Henry Ford Medical Center, New Center One

Detroit, Michigan, United States

RECRUITING

Central Contacts

Danielle M Hawkins, B.S.

CONTACT

248-535-8322 hawki105@msu.edu

Data from ClinicalTrials.gov

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