Warning Signs of Squamous Cell Carcinoma and Prevention of SCC by at Risk Organ Transplant Recipients

Northwestern University75 enrolled

Overview

Using focus group and cognitive interviews with organ transplant recipients, the investigators developed interactive workbooks: a) prevention by sun protection b) early detection by skin self-examination (SSE). The investigators hypothesis is if the patient learns by acquiring skills in a favorable environment, then the patient may reduce their anxiety, enhance self-efficacy and perform self-management by SSE and sun protection. The investigators also evaluate existing internet sources of primary and secondary prevention of skin cancer for organ transplant recipients.

Study Type

INTERVENTIONAL

Allocation

RANDOMIZED

Purpose

SCREENING

Masking

NONE

Enrollment

Conditions

Squamous Cell Carcinoma

Interventions

Educational Intervention

Eligibility

Sex: ALLMin age: 18 YearsMax age: 85 Years

Medical Language ↔ Plain English

Inclusion Criteria: * People with a history of solid organ transplantation within the last 2 years * Speaks English * Can see to do SSE, capable of seeing to read a newspaper * Stable health, patients report a general state of well being Exclusion Criteria: * Unable to speak English * Insufficient vision to see their own skin as determined by their ability to read a newspaper * Comorbid debilitating disease * Dementia or insufficient cognitive skills to follow instructions provided at a sixth grade language level.

Outcomes

Primary Outcomes

Number of Control and Intervention Participants on Skin Self-examination Performance at Follow-up 1 Month After Intervention

The number of control and intervention participants who checked their skin for cancer within the 1 month after the study visit.

Time frame: 1 month