Funded by a unique private philanthropy and public coalition through THE ASSOCIATED: Jewish Community Federation of Baltimore, this project seeks to develop effective ways to deliver dementia care to older adults with memory disorders who live in the community. MIND at Home is an 18 month intervention research study whose goals are two-fold: To partner with community organizations to help proactively identify older adults in the Baltimore community who may need help related to memory disorders; To find out if providing person-centered, coordinated care will help older adults with memory disorders remain at home longer, as well other possible benefits. The investigators hypothesize that individuals with memory disorders that receive person-centered, coordinated care will have fewer unmet dementia-related needs, improved quality of life and function, fewer behavioral and depressive symptoms, and will be able to remain in their homes longer compared to individuals who receive augmented usual care.
Study Type
INTERVENTIONAL
Purpose
TREATMENT
Masking
SINGLE
Enrollment
303
dementia-related care coordination
Johns Hopkins University
Baltimore, Maryland, United States
Change in unmet dementia-related needs from Baseline to 18 months
Unmet dementia-related needs as measured by the Johns Hopkins Dementia Care Needs Assessment (JHDCNA), clinican-based assessment of 21 domains (92 individual items)
Time frame: 18 months
Change in quality of life from Baseline to 18 months
Participant quality of life measured by Quality of Life in Alzheimers Disease (QOL-AD) and Alzheimer's Disease Related Quality of life scale (ADRQL). Caregiver quality of life measured by SF-12.
Time frame: 18 month
length of stay
Length of stay in the community assessed by number of days from initial study assessment to end of study observation or to date that the subject leaves their community-based residence (e.g. move to nursing home, assisted living, death) prior to end of study observation.
Time frame: 18 months
neuropsychiatric behavior symptoms from baseline to 18 months
Neuropsychiatric behavior measured by the Neuropsychiatry Inventory Questionnaire
Time frame: 18 month
day-to-day function from baseline to 18 months
Day-to-day function assessed by the Instrumental Activities of Daily Living Scale and the Psycho-geriatric Dependency Rating Scale
Time frame: 18 month
health care utilization from baseline to 18 months
Inpatient, residential, Alzheimer Disease-related, mental health, and medical health care use measured by the SURFS
Time frame: 18 month
depression from baseline to 18 months
Participant depression measured by the Cornell Scale for Depression (CSDD) in Dementia. Caregiver depression measured by the Geriatric Depression Scale (GDS).
Time frame: 18 month
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