The project will involve conducting a Needs Assessment for Gastroparesis patients and their caregivers with the goal of identifying quality of life issues associated with this disease. Identifying these issues will ameliorate management and support systems for gastroparesis currently existent in the community and, hopefully, provide information for the establishment of more resources to assist the patients and their families.
This project will involve: a) distributing questionnaires to up to 200 participants (100 patients and 100 caregivers) at the Shands Gastrointestinal clinic and b) focus groups including patients, medical provider, and the clinic case manager. The questionnaires will provide information on the relative effect of gastroparesis on the quality of life of the patients and their caregivers. Assessment of this needs assessment will then help identify areas of potential resource improvement and mobilization to provide support for the patients and their family members.
Study Type
OBSERVATIONAL
Enrollment
68
University of Florida
Gainesville, Florida, United States
Score in a Quality of life assessment Questionnaire
Time frame: During the clinicial visit at the day of enrollment(Day 1)
Score in a Quality of life assessment Questionnaire
Time frame: 1st follow-up, at 6 months from Date of enrollment
Score in a Quality of life assessment Questionnaire
Time frame: 2nd follow-up, at 12 months from date of enrollment
Score in a Quality of life assessment Questionnaire
Time frame: 3rd follow-up, at 18 months form date of enrollment
Score in a Quality of life assessment Questionnaire
Time frame: 4th(last) follow-up, At 24 months form date of enrollment
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