The purpose of this study is to see whether or not Family Navigators, who 1 ) help families after their child is diagnosed with autism and help them get autism specific services for their child 2) help families identify barriers to obtaining these services and 3) help families problem solve to overcome these barrier, are helpful to parents of a child newly diagnosed with an Autism Spectrum Disorder.
Study Type
INTERVENTIONAL
Allocation
RANDOMIZED
Purpose
SUPPORTIVE_CARE
Masking
SINGLE
Enrollment
192
Families in the intervention group will receive approximately six sessions with a Family Navigator. The Family Navigator will: 1. Help family identify key issues they need to address to get their child autism-specific services 2. Help family address barriers to obtaining these services and strategize approaches to overcome them.
Boston Medical Center
Boston, Massachusetts, United States
Hours of Services
Mean number of autism-specific service hours received per week
Time frame: 6 months after enrollment
Receipt of adequate services
As defined by 25 hours/week
Time frame: 6 months after enrollment
Time to Receipt of Services
Difference between the date of the IEP/IFPS and date the child first received services
Time frame: 6 months after enrollment
Family Psychological Functioning
* Quick Inventory of Depressive Symptomatology-Self Rated (QIDS-SR). * Parenting Stress - Short Form (PSI) * Perceived Stress Scale- Self-Report (PSS) * Medical Outcomes Study Social Support (MOS-SS)
Time frame: 6 months after enrollment
Family Psychological Functioning
* Quick Inventory of Depressive Symptomatology-Self Rated (QIDS-SR). * Parenting Stress - Short Form (PSI) * Perceived Stress Scale- Self-Report (PSS) * Medical Outcomes Study Social Support (MOS-SS)
Time frame: Baseline
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