This is a before-after phase II study, according to the Medical Research Council framework, investigating the feasibility of introducing the Liverpool Care Pathway for the dying patient (LCP) in 5 Ligurian hospices.
Study Type
INTERVENTIONAL
Allocation
NA
Masking
NONE
Enrollment
282
The LCP Program is continuous quality improvement program of end-of-life care implemented in hospice
Hospice ASL 4
Chiavari, Genova, Italy
Hospice Gigi Ghirotti "Albaro"
Genova, Italy
Hospice Gigi Ghirotti "Bolzaneto"
Genova, Italy
Hospice ASL1 Liguria
Imperia, Italy
feasibility of LCP implementation
measured as proportion of hospices that complete the experimental phase of introducing the LCP Program and maintain the program in the 6 months subsequent the process of experimental LCP implementation
Time frame: 6 months after the end of LCP implementation
quality of information provided to patients and to family
measured with the scale 1 (Informing and promoting shared decision making) from the Toolkit After-death bereaved family member interview (Teno 2001). The Toolkit will be administered to non-professional caregivers 2-4 months after the patient's death
Time frame: 2-4 months after the patient's death
Level of advanced care planning among patients
measured with the scale 2 (Encouraging advance care planning) from the Toolkit After-death bereaved family member interview (Teno 2001). The Toolkit will be administered to non-professional caregivers 2-4 months after the patient's death
Time frame: 2 - 4 months after the patient's death
Provision of care focusing on patient's individual needs.
measured with the scale 3 (Focus on individual) from the Toolkit After-death bereaved family member interview (Teno 2001). The Toolkit will be administered to non-professional caregivers 2-4 months after the patient's death
Time frame: 2 - 4 months after the patient's death
Quality of emotional support to family members before an after the patient's death
measured with the scale 4 (Attending to the emotional and spiritual needs of the family) from the Toolkit After-death bereaved family member interview (Teno 2001). The Toolkit will be administered to non-professional caregivers 2-4 months after the patient's death
Time frame: 2 - 4 months after the patient's death
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CENTRO MISERICORDIA" SANTA M.G.ROSSELLO. Ist.Figlie Ns Signora Misericordia
Savona, Italy
Level of care coordination
measured with the scale 5 (Providing coordination of care) from the Toolkit After-death bereaved family member interview (Teno 2001). The Toolkit will be administered to non-professional caregivers 2-4 months after the patient's death
Time frame: 2 - 4 months after the patient's death
Family support levels
measured with the scale 6 (Supporting the self-efficacy of the family) from the Toolkit After-death bereaved family member interview (Teno 2001). The Toolkit will be administered to non-professional caregivers 2-4 months after the patient's death
Time frame: 2 - 4 months after the death of the patient
Appropriateness of therapeutic and diagnostic procedures
measured with a specific tool in which all diagnostic and therapeutic procedures and drugs administered to the patient during the last 3 days of life are reported
Time frame: the last 3 days of life
Overall quality of care experience for patients and family
measured with the scale 7 (Overall quality of care provided to patients and family) from the Toolkit After-death bereaved family member interview (Teno 2001). The Toolkit will be administered to non-professional caregivers 2-4 months after the patient's death
Time frame: 2 - 4 months after the death of the patient
Quality of communication between General Practitioner and hospice
measured with a telephonic interview
Time frame: an expected average of 2 months after the patient's death