This study is conducted in Africa and Asia. The aim of this study is to evaluate in the participating countries the orthopaedic status and the degree of arthropathy of severe haemophilia patients in general.
Study Type
OBSERVATIONAL
Enrollment
282
Subject will only fill out a questionaire
Novo Nordisk Investigational Site
Bangalore, India
Novo Nordisk Investigational Site
Casablanca, Morocco
Novo Nordisk Investigational Site
Muscat, Oman
Novo Nordisk Investigational Site
Sandton, South Africa
Type of haemophilia and inhibitor characteristics: Against FVIII or FIX; high or low titre; anamnestic response (high or low responder)
Time frame: After 6 months (recruitment and data collection)
Clinical (using Haemophilia joint score) and radiological (using Pettersson score) orthopaedic status of defined joints: Elbow, knees and ankles in relation to haemophilia A or B
Time frame: After 6 months (recruitment and data collection)
Mean orthopaedic score in the 4 groups according to the Pettersson and Haemophilia joint scores
Time frame: After 6 months (recruitment and data collection)
Usage of anti haemophilic treatment in IU/kg
Time frame: During the last year preceding patient recruitment
Quality of Life - EQ-5D (Euro Quality - 5 Domains) questionnaire
Time frame: After 6 months (recruitment and data collection)
Economic aspects of the management of haemophiliacs and its burden on patient/family and community resources
Time frame: After 6 months (recruitment and data collection)
Living characteristics of the patient's household
Time frame: After 6 months (recruitment and data collection)
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