The MURDOCK Study Registry and Biorepository Horizon 1.5

N/AActive Not RecruitingNCT01708408

Duke University50,000 enrolled

Overview

The MURDOCK Study Community Registry and Biorepository (Horizon 1.5) aims to create a large-scale community registry and biorepository that can be used as a vehicle for future health services, epidemiologic, clinical trials and other omics-related research.

The MURDOCK Study Community Registry and Biorepository's activities include enrolling approximately 50,000 participants who live in Cabarrus County and/or Kannapolis, North Carolina. Participants must consent to (1) use of the data provided by the participant through completion of the Participant Registry Questionnaire for epidemiologic population characterization, (2) annual contact to update their MURDOCK Horizon 1.5 database record, (3) release of their medical information, including but not limited to demographic information, problem lists, medications, social and family history, and results of laboratory and other testing modalities from pre-existing paper or electronic health records or electronic health records that may become available in the future, (4) provision of a blood and urine sample, and (5) contact up to four times/year to request participation in additional research studies.

Study Type

OBSERVATIONAL

Enrollment

50,000

Conditions

Chronic Disease Healthy Volunteers

Interventions

Biomarker studiesGENETIC

Eligibility

Sex: ALLMin age: 18 YearsHealthy volunteers:

Medical Language ↔ Plain English

Inclusion Criteria: 1. A resident of Cabarrus County and/or the city of Kannapolis (and surrounding regions) for 6 or more months of the year 2. At least 18 years of age 3. Able to understand and give written informed consent, or have a legal guardian or caregiver present to give informed consent by proxy (assent from a participant between ages 12-18 will be obtained when their parent or legal guardian consents on their behalf). 4. Willing and able to participate in all 5 components of the registry and biorepository as described above in Section III Exclusion Criteria: 1\. There are no exclusions to participation if all inclusion criteria have been met.

Locations (1)

Duke Clinical Translational Science Institute-MURDOCK Study

Kannapolis, North Carolina, United States

Outcomes

Primary Outcomes

The MURDOCK Study Registry and Biorepository Horizon 1.5

To provide information for large-scale epidemiologic and clinical translational research and the research infrastructure to identify specific phenotypes and outcomes to improve medicine

Time frame: Upto 119 months

Data from ClinicalTrials.gov

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