Epilepsy Impact Scale

Stanford University51 enrolled

Overview

The investigators are developing a questionnaire that can quickly measure the impact that epilepsy has on a person's life. This questionnaire will be useful in following whether the impact of epilepsy increases, decreases or stays the same over time. The results also may point out areas that would benefit from discussion or attention in visits with your doctor.

The investigators have used a set of broad open-ended questions about the impact of epilepsy on a person's life to formulate a long list of questions to characterize the impact the seizures, medications, and comorbidities that you are having. In the future, this will be boiled down to a short list of questions.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Epilepsy

Interventions

Interviews and questionnairesOTHER

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: 1. Age 18 or more. 2. Patient has had at least 1 seizure in the past 365 days. 3. Patient can speak and understand English. Exclusion Criteria: 1. Patients suspected of having one of the imitators of epilepsy, for example, syncope, sleep disorder, psychogenic nonepileptic seizures, will be excluded, even if they also have epileptic seizures. 2. Patients unwilling to spend the time doing the questionnaire.

Locations (1)

Stanford University School of Medicine

Stanford, California, United States

Outcomes

Primary Outcomes

Validation of a concise question set

Time frame: Up to 1 year for question set validation, data presentation within up to 1.5 years

Secondary Outcomes

Correlation of subscales

Correlation of subscales of the study questionnaire with previously validated scales, including QoLiE-39, NHS Seizure Severity Scale, Liverpool side effects scale, Beck Depression Index

Time frame: Up to 1.5 years

Data from ClinicalTrials.gov

This platform is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional.