The purpose of this study is to better understand why children with short gut develop feeding problems.
We seek to identify characteristics of our patients' histories that are associated with feeding problems in the context of availability of early prophylactic occupational therapy. We plan to review our most recent four years' experience in children with short gut syndrome with onset in early infancy who initially required home parenteral nutrition to identify risk factors or clusters of risk factors associated with food aversion.
Study Type
OBSERVATIONAL
Enrollment
58
Children's Hospital Los Angeles
Los Angeles, California, United States
Retrospective data
Data will be reviewed starting at the patient's birth. We will only be looking at patients who have been seen in the clinic since July 1, 2008; some of these will have medical records going back as early as 2006. We will continue to collect future data for up to 1 year from the beginning of data collection.
Time frame: up to 1 year
Validated Questionnaires
Validated questionnaires (where available) will be administered prospectively to grade current feeding competence for age, assess developmental status, assess food preferences and score parental stress. Only the food preference questionnaire will be administered to the healthy control group.
Time frame: 2 hours
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