This pilot research trial studies patient preferences in making treatment decisions in patients with stage I-IVA oropharyngeal cancer. Questionnaires that measure patient priorities before and after treatment may improve the ability to plan for better quality of life in patients with oropharyngeal cancer.
PRIMARY OBJECTIVES: I. Determine the stability of Head and Neck Priorities Scale (HNPS) ranking between pre- and post-treatment assessments. SECONDARY OBJECTIVES: I. Use patient-interviews to refine and modify the HNPS for use in a larger scale trial. II. Pilot the Head and Neck Patient Outcomes Survey (HNPOS) as a potential tool to identify priorities most important to quality-of-life outcomes. III. Use the Functional Assessment of Cancer Therapy - Head and Neck (FACT-H\&N) and EurolQoL-5D to determine the validity of the HNPOS. OUTLINE: Patients participate in a 45-minute interview comprising assessment of priorities and quality of life at baseline, 1, 6, and 12 months.
Study Type
OBSERVATIONAL
Enrollment
37
Ancillary studies
Ancillary studies
University of Chicago Comprehensive Cancer Center
Chicago, Illinois, United States
Stability of HNPS ranking between pre- and post-treatment assessments
Proportion of patients for whom the domain was considered stable calculated. Exact binomial tests will be used to test whether each proportion is greater than 50%.
Time frame: Up to 12 months
Reliability of HNPPQ scale, in terms of test-retest and internal consistency
Weighted kappa coefficients will serve as the measure of agreement between the two replicates. Cronbach's alpha will be used to assess internal consistency.
Time frame: Up to 12 months
Validity of HNPOS
Nine HNPOS items will be compared to corresponding items on the FACT H\&N scale. For each item, Kendall's tau-c will be computed for a measure of association suitable for contingency analyses of two ordinal variables.
Time frame: Up to 12 months
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