The purpose of this study is to gain insight in the distress experience and quality of life of patients suspected of having a serious lung disease during the diagnostic phase and the period between diagnosis and start of treatment
A life-threatening disease often leads to distress, an emotional experience that can interfere with coping. Studies in lung cancer patients show high prevalence of distress during the course of the disease. However until now, very few research was done during the diagnostic workup. This prospective study will describe and explore distress, quality of life and illness perception in lung cancer patients during the diagnostic period until first follow-up visit 4 weeks after start of therapy. Patient reported questionnaires will be used.
Study Type
OBSERVATIONAL
Enrollment
105
observational study, there is no study intervention, only patient questionnaires
Algemeen Stedelijk Ziekenhuis Aalst
Aalst, Belgium
AZ Monica
Antwerp, Belgium
Gasthuis Zusters Antwerpen
Antwerp, Belgium
Universiteit Antwerpen
Antwerp, Belgium
longitudinal assessment of distress
patient reported questionnaire (distress barometer)
Time frame: at time of suspected lung cancer, at time of diagnosis, at time of treatment start, 4 weeks after treatment start
longitudinal assessment of quality of life
patient reported questionnaire (EORTC QLQ-C30 + lung cancer module)
Time frame: at time of suspected lung cancer, at time of diagnosis, at time of treatment start, 4 weeks after treatment start
longitudinal assessment of illness perception
patient reported questionnaire (Brief-Illness Perception questionnaire)
Time frame: at time of suspected lung cancer, at time of diagnosis, at time of treatment start, 4 weeks after treatment start
duration of diagnostic phase and period between diagnosis and treatment start
Time frame: date of suspected lung cancer, date communication of diagnosis, date of treatment start
explore which factors are associated with distress, quality of life and illness perception
potential associated factors include patient demographic characteristics, performed diagnostic procedures, disease and treatment characteristics
Time frame: first visit suspected lung cancer, communication of diagnosis, treatment start, 4 weeks after treatment start
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Ziekenhuis Netwerk Antwerpen
Antwerp, Belgium
AZ St Jozef
Bornem, Belgium
AZ Maria Middelares Sint Jozef
Ghent, Belgium
AZ Herentals
Herentals, Belgium