Clinical, Biological and NMR Outcome Measures Study for Hereditary Inclusion Body Myopathy Due to Mutation of UDP-N-acetylglucosamine 2-epimerase/N-acetylmannosamine Kinase Gene (GNE)

Inclusion Criteria: * Must be at least 18 years of age. * Must be willing and able to provide consent. * Must have a genetic diagnosis of HIBM, GNE myopathy, Quadriceps Sparing Myopathy (QSM), Inclusion Body Myopathy Type 2, distal myopathy with rimmed vacuoles (DMRV), or Nonaka disease. * Must be willing and able to comply with all study requirements. * Affiliated to or a beneficiary of a social security category * Must take part in the HIBM-PMP UX001-CL401 study Exclusion Criteria: * Received ManNAc therapy or other similar substance * Any unrelated, comorbid disease or condition that, in the view of the investigator, would interfere with study participation or would affect safety. * Patients with specific contraindication to MRI (i.e. metallic foreign body, claustrophobia…) will be allowed to participate, but MRI will not be performed. * Pregnant women.