Patient-Provider Tools to Improve the Transition to Adult Care in Sickle Cell Disease

Inclusion Criteria: * Have sickle cell disease (SCD) * Between the ages of 13 and 24 * Receive care at Cincinnati Children's Hospital Medical Center, University Hospital, University of Cincinnati Med Peds Practice, a practice in the Ohio Valley SCD Network, or another local provider * Parent/caregiver of a patient with SCD age 13-24 years Exclusion Criteria: * Below age 13 * Have significant health complication(s) that would interfere with completion of the intervention (by physician report) * Have significant cognitive or developmental disabilities (by parent or physician report) due to high demand on participants to understand questions * Are not a patient at Cincinnati Children's Hospital Medical Center, University Hospital, University of Cincinnati Med Peds Practice, a practice in the Ohio Valley SCD Network, or another local provider * Are not a parent/caregiver of a patient with SCD age 13-24 years