The program consists of a 6-week small-group workshop for caregivers of people with memory problems. The goal of the study is to evaluate in a one year longitudinal study, program effectiveness in reducing caregiver stress, depression, fatigue, burden, days lost from work and improving sleep, healthful behaviors and self-efficacy
The Building Better Caregivers workshop meets for 2.5 hours per week for 6 weeks in small groups of 10-16. It is peer-led (leaders already trained in the Stanford model must take a 2-day cross-training before leading a BBC workshop). Participants will learn self-management skills such as decision making, goal setting, action planning, stress management, dealing with difficult behaviors, working with the health care system, planning for the future,building an exercise program, communication skills, healthy eating, etc. All participants will complete follow up questionnaires and 6 and 12 months. They will have the option of completing the questionnaire by mail or telephone interview. Once a particular workshop site is identified by a partner organization, Stanford will provide packets of consents and questionnaires to the site coordinator(non-Stanford). The site coordinator will either schedule an extra hour for the first meeting of the 6-week series, or an orientation meeting held a week or so before the workshop begins. During this time, the coordinator will announce to the prospective subjects that this study is being conducted and that they are invited to participate, and will pass out a consent, questionnaire and consent copy to each prospective participant. The consent and questionnaire are self-administered. This study is longitudinal, so no randomization will take place. Stanford holds no meetings, but receives the data. The site coordinators hold the orientation meetings. The workshops are scheduled by the various organizations, and they determine when and how the orientation time is scheduled. It will vary from site to site.
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
PREVENTION
Masking
NONE
Enrollment
128
Stanford University School of Medicine
Stanford, California, United States
Fatigue
visual numeric 0-10 scale
Time frame: baseline-1 year
Pain
visual numeric 0-10 scale
Time frame: baseline-1 year
stress
visual numeric 0-10 scale
Time frame: baseline-1 year
problems sleeping
visual numeric 0-10 scale
Time frame: baseline-1 year
depression (PHQ-8)
8 item 0-3 scale
Time frame: baseline-1 year
self-efficacy for caregiving
9-item 1-10 scale
Time frame: baseline-1 year
caregiver stress
13-item 3 point scale
Time frame: baseline-1 year
caregiver burden
12-item 5 point scale
Time frame: baseline-1 year
health care utilization (doctor, emergency department, hospital)
number of times/days in past 6 month visited doctor, emergency department, hospital
Time frame: baseline-1 year
exercise
number of minutes of exercise in past week
Time frame: baseline- 1 year
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general health
single item scale of overall health
Time frame: baseline-1 year
care partner health utilization
number of MD ER hospital visits for person being cared for in past 6 months
Time frame: baseline- 1 year
carepartners general health
single item scale of overall health of person being cared for
Time frame: baseline-1 year