This survey is conducted in South America. The purpose is to identify the key psychosocial issues affecting patients with haemophilia.
Study Type
OBSERVATIONAL
Enrollment
200
No treatment given. Participants are to complete a questionnaire in the study.
Unnamed facility
Säo Paulo, Brazil
Qualitative assessments of perceived impact on daily life
Time frame: Day 1
Perceived disease control
Time frame: Day 1
Carrier status and reactions to haemophilia diagnosis
Time frame: Day 1
Genetic counselling and testing
Time frame: Day 1
Impact of haemophilia in siblings
Time frame: Day 1
Satisfaction with support from partners, family, friends, others
Time frame: Day 1
Sexual intimacy with partners in long-term relationships
Time frame: Day 1
Treatment method, compliance and location
Time frame: Day 1
Modified WHO-5 (World Health Organization-Five Well Being Index)
Time frame: Day 1
Knowledge and information about haemophilia
Time frame: Day 1
Improvements in haemophilia care
Time frame: Day 1
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