The purpose of this study is to evaluate the effect of a nursing program in patients with cystic fibrosis.
All patients living with cystic fibrosis will be asked by questionnaire before (November 2014) and after (September 2016) the implementation of the program about their satisfaction with treatment, trust in the CF-Team, adherence, self-efficacy, treatment burden and quality of life.
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
SUPPORTIVE_CARE
Masking
NONE
Enrollment
35
University Hospital Zurich
Zurich, Switzerland
Difference between baseline patient satisfaction and month 22
Self-reported patient satisfaction will be measured with a newly developped questionnaire.
Time frame: month 22
Difference between baseline adherence and month 22
Self-reported adherence to therapy will be measured with the Medication Adherence Report Scale (MARS) and a newly developped questionnaire.
Time frame: month 22
Difference between baseline self-efficacy and month 22
Self-reported self-efficacy to master the the therapeutic regimen will be measured with a newly developped questionnaire.
Time frame: month 22
Difference between baseline treatment burden and month 22
Self-reported treatment burden will be measured wiht a subscale of the CFQ-R.
Time frame: month 22
Difference between baseline trust and month 22
Self-reported trust will be measured with the short version of the Wake Forest Trust Scale.
Time frame: month 22
Difference between baseline information need and month 22
Information needs will be assessed with a subscale of the PICKER-questionnaire for patients with CF.
Time frame: month 22
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