Correlation Between Respiratory Impairment and Phonemes Alteration in Dystrophinopathy Patients With Respiratory Failure

Centre d'Investigation Clinique et Technologique 80530 enrolled

Overview

Communication is essential for patients quality of life because it impact on patients care quality. Neuromuscular diseases, caracterised by motor damages, hinder non-verbal communication of the patient. Therefore, speech must to be functional. However, correlation between respiratory failure and voice quality is not very well known. The aim of the study is to search a link between respiratory failure and speech impairment in patients with neuromuscular diseases.

Study Type

OBSERVATIONAL

Enrollment

Conditions

During the Medical Appointment, the Speech Therapist Will Perform Phonetic Tests

Interventions

phonetic testsBEHAVIORAL

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: * Respiratory autonomy at least 1 hour per day * Stable patient during the study * Patient with education at least up to secondary school Exclusion Criteria: * Refusal to participate * Inability to cooperate * Tracheostomized patients * Mechanic ventilation - dependant patients * Respiratory autonomy lower than 1 hour per day * Patients with hemodynamic instabillity * Patient insured under the French social security system

Outcomes

Primary Outcomes

Intelligibility phonetic test

Time frame: 5 minutes

Number and nature of altered phonemes