Characteristics and Outcomes of Childhood Moyamoya in the UK

Great Ormond Street Hospital for Children NHS Foundation Trust98 enrolled

Overview

This is a study to ascertain the number of children with moyamoya in the UK, their presenting features, clinical course and outcomes.

The study ahs 3 components: 1. Patient identification via the British Paediatric Surveillance Unit, and the 21 collaborating centres 2. Record review/patient interview to determine clinical features \& outcomes 3. Centralised review of imaging data to ascertain radiological phenotypes

Study Type

OBSERVATIONAL

Enrollment

Conditions

Moyamoya

Eligibility

Sex: ALLMax age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: * Radiological diagnosis of moyamoya Exclusion Criteria: * Refuse consent

Locations (1)

Great Ormond Street Hospital for CHidlren NHS Foundation Trust

London, United Kingdom

Outcomes

Primary Outcomes

Number of children with moyamoya in UK

Time frame: 2 years

Secondary Outcomes

clinical features & outcomes of childhood moyamoya

Time frame: 2 years

radioplogical features of childhood Moyamoya

Time frame: 2 years

Data from ClinicalTrials.gov

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