Rationalization of the Treatment Pathway of Patient Suffering From Rare Skin Disease With Telemedicine

University Hospital, Toulouse212 enrolled

Overview

The investigators want to demonstrate that a new organization with telemedicine could rationalize the treatment pathway of patient suffering from rare skin disease. A diagnosis and a personalised treatment pathway could be performed before the consultation in the hospital.

Study Type

INTERVENTIONAL

Allocation

RANDOMIZED

Purpose

SUPPORTIVE_CARE

Masking

NONE

Enrollment

212

Conditions

Skin Disease

Interventions

telemedicinePROCEDURE

treatment pathway organized by telemedicine

Eligibility

Sex: ALL

Medical Language ↔ Plain English

Inclusion Criteria: * New patients suffering from a rare skin disease whatever pathology or age, which needs a take-over by this centre * Or patients already take-over by the centre but lost to follow-up for more than one year * Patients (and/or parents) who give their consents * Patients (and/or parents) able to fill in questionnaires Exclusion Criteria: * Pregnant or breast-feeding women. * Patients subject to a judicial safeguard order * Patients who need an emergency take-over * Patients followed by a doctor who does not have a computerized system or refuse to send data via the secured messaging

Locations (1)

UHToulouse

Toulouse, France

Outcomes

Primary Outcomes

Number of hospital visits

Interest of a procedure of telemedicine on the organization of the treatment pathway of patients affected by rare skin diseases in terms of change of the number of visit in hospital.

Time frame: 6 months

Secondary Outcomes

Improvement of the treatment pathway and its organization

Traceability in the information system by composite criteria : number of completed application forms, number of meeting per month, number of meeting a month, number of patients treated a month, time dedicated to the logistical coordination (collection by sheets of weekly time) and number of new patients per month.

Time frame: 6 months

Satisfaction of the patient

questionnaire of satisfaction Short Form-36 Health Survey (SF36)

Time frame: 6 months

Change of the cost related to the patient care (direct and indirect).

Composite criteria with number of consultations and hospitalizations, number of visit in hospital and number of days of work and school absenteeism.

Time frame: 6 months

management of time by the medical personal.

collection by sheets of weekly time

Time frame: 6 months

Data from ClinicalTrials.gov

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