The increasing awareness of the importance of palliative care has led, in Israel, to the 2005 Law for the Rights of Persons with Terminal Illness. Still, problems of accessibility to palliative care remain unresolved. The use of e-health services is likely to expand the ability of the medical, psychosocial and nursing staff to reach patients who are either living in the periphery, are unable to make clinic visits or whose family members are housebound in order to be caregivers. This exploratory research is designed to explore the issues, barriers and advantages of e-health care through the perspective of the palliative care staff members, the patients themselves and their caregiving family members.
This study is designed to test the applicability and suitability of e-health services (e.g. by use of SKYPE) to the psychosocial needs of patients and their families who are getting services through home hospice care. In addition, the attitudes of the hospice staff will be investigated to the use of e-health methods. The study will clarify selection criteria, referral pathways and barriers and/or supporting elements that will allow e-health services to be provided in a highly professional fashion. Up to 20 dyads of a patient and their primary caregiver will be recruited from those who are receiving services from the home hospice unit of the Kupat Holim Clalit (General Sick Fund) in the South of Israel.
Study Type
INTERVENTIONAL
Allocation
NON_RANDOMIZED
Purpose
SUPPORTIVE_CARE
Masking
NONE
Enrollment
20
e-health services (e.g. by use of SKYPE) to the psychosocial needs of patients and their families who are getting services through home hospice care. In addition, the attitudes of the hospice staff will be investigated to the use of e-health methods.
SWAT - The social work assessment tool
Tool to assess the quality of social work psychosocial services
Time frame: One year
EIS (Emotional Intimacy Scale)
assess the emotional intimacy component a close relationship
Time frame: 6 month
SLDS (Satisfaction with cancer scale)
assess cancer patient quality of life
Time frame: 6 month
the will to live question
assess the will to live in a specific time point
Time frame: 6 month
ZBI (Zarit burden scale),
assess primary care burden
Time frame: 6 month
attitudes toward use of e-therapy questionnaire.
estimate attitudes of professional care giver
Time frame: 6 month
This platform is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional.