Caregiver Burden Within the Ambulatory Extended Recovery (AXR) Patient Population

Memorial Sloan Kettering Cancer Center47 enrolled

Overview

The purpose of this study is to understand the level of caregiver burden related to caring for a patient who goes home within the first 24 hours following surgery. As the caregiver they are providing care to a family member, friend, or neighbor. Even when not formally trained, the care they provide is important to the patient's recovery. Providing care in this manner can be stressful. This study will help us understand what aspects of the patient's recovery are most difficult for the caregiver.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Caregiver Burden

Interventions

Caregiver Reaction Assessment (CRA)BEHAVIORAL

The Caregiver Quality of Life - Cancer (CQOLC)BEHAVIORAL

Eligibility

Sex: ALLMin age: 18 YearsHealthy volunteers:

Medical Language ↔ Plain English

Inclusion Criteria: * Caregiver/patient pairs undergoing surgery for an indication tracked within the Breast, Gynecology, Head and Neck, and Urology AXR program * English speaking * Patients willing to provide demographic, surgical, and outcome information * Caregivers willing to provide demographic, socioeconomic, and caregiver experience information * Caregivers willing to complete the caregiver burden measurement scales Exclusion Criteria: * Patients undergoing surgery within the AXR pathway that do not have a caregiver * Non-English speaking patients or caregivers * Patients unwilling to provide demographic and surgical information * Caregivers unwilling to provide demographic, socioeconomic, or caregiver experience information or unwilling to complete the caregiver burden measurement scales

Locations (1)

Memorial Sloan Kettering Cancer Center

New York, New York, United States

Outcomes

Primary Outcomes

Caregiver Reaction Assessment (CRA) score

in the AXR patient population. Burden will be defined as both a total CRA score and sub scores and will be summarized using descriptive statistics. CRA total score of 72 and subscale scores of 3 or greater will be used to indicate high levels of caregiver

Time frame: 1 year

Data from ClinicalTrials.gov

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