Pediatric heart transplant patients have a high-risk cardiovascular profile affecting their long-term outcomes and survival. Currently, no effective cardiovascular preventative care is provided for this pediatric population, in part, due to the fact that clinic-based programs are not easily accessible to children and their families. However, tele-health has been show to improve medical outcomes by making care more accessible to these patients. This study aims to meet the urgent need for an effective and sustainable delivery of preventative care to pediatric heart transplant patients using a diet and exercise intervention program delivered live over the internet direct to these patients' homes.
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
PREVENTION
Masking
NONE
Enrollment
14
Initial 16 weeks of on-line, live exercise instruction 3x/week and on-line, diet sessions followed by 16 weeks of weekly exercise and diet sessions.
Stanford Children's Health
Palo Alto, California, United States
Change in Endothelial Pulse Amplitude Testing Index
Test of endothelial function
Time frame: Baseline, 16 weeks, and 32 weeks
Arterial Tonometry
Time frame: Baseline, 16 weeks, and 32 weeks
Carotid Artery Imaging
Time frame: Baseline, 16 weeks, and 32 weeks
Fasting Low-Density Lipoprotein Level
Time frame: Baseline, 16 weeks, and 32 weeks
Volume of Oxygen Consumed at Maximal Exertion
Time frame: Baseline, 16 weeks, and 32 weeks
Physical and Psychosocial Health Questionnaire Scores
Both parents and patients will be asked to complete this questionnaire
Time frame: Baseline, 16 weeks, and 32 weeks
Functional Movement Screening Score
Participants will be asked to perform certain movements. The range of motion will be scored and totaled for evaluation.
Time frame: Baseline, 16 weeks, and 32 weeks
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