The purpose of this study is to collect and organize data into a repository to gather relevant information for future research from patients diagnosed with a rare malignant sinonasal cancer called esthesioneuroblastoma (ENB) and are scheduled to undergo endonasal skull base surgery. Data being collected includes surgical data, demographics, disease presentation, MRI, CT, PET imaging, and post-operative assessments including pathology tests. After surgery, the investigators will collect chemotherapy and radiation data. Participants will also complete quality of life questionnaires at their follow-up visits.
Study Type
OBSERVATIONAL
The Ohio State University
Columbus, Ohio, United States
Quality of Life
Anterior Skull Base (ASB); Skull Base Inventory (SBI); Multidimensional Disease Specific Inventory MDS; ASB-Nasal 12; Sino-Nasal Outcome Test (SNOT-20)
Time frame: up to 120 months after treatment
Progression-free survival and overall survival
Kaplan-Meier survival curves
Time frame: Up to 120 months
Number of participants with intraoperative complications
Time frame: up to 120 months
Number of participants with postoperative complications
Time frame: up to 120 months
Length of Hospital Stay
Time frame: up to 120 months
Time spent in operating room
Time frame: up to 120 months
MRI imaging evidence of resection
Time frame: up to 120 months
Surgical Technique
Time frame: up to 120 months
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