Developing a Program for Transition to Adult Care for Youth With Chronic Conditions : a Mixed Method Study

Assistance Publique - Hôpitaux de Paris390 enrolled

Overview

Investigation in 3 steps the transition of young people with chronic diseases. FIRST STEP: qualitative survey. Interviews with carers, young people and parents. Chronic Diseases studied: epilepsy, HIV, sickle cell disease, obesity. SECOND STEP: Delphi consensus survey. Vote on internet : carers, patients' associations, young people and family. Chronic Diseases studied: all. THIRD STEP: validation survey. Vote on internet : young people. Chronic Diseases studied: all.

Study Type

OBSERVATIONAL

Enrollment

390

Conditions

Transition Care

Eligibility

Sex: ALL

Medical Language ↔ Plain English

Inclusion Criteria: * Youth with chronic diseases after transfer to adult care * Parents or guardians of these youth. * Professionals caregivers from pediatric services and adult services involved in transition Exclusion Criteria: \-

Locations (1)

Robert Debré Hospital

Paris, France

Outcomes

Primary Outcomes

Agreement rate for each component of the transition program defined

Time frame: 2 years

Data from ClinicalTrials.gov

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