The aim of the registry is the assessment of the diagnosis and treatment of CTEPH (Chronic Thromboembolic Pulmonary Hypertension) in EMEA (Europe/Middle East/Africa) countries.
Study Type
OBSERVATIONAL
Enrollment
231
At the discretion of the attending physician.
Unnamed facility
Multiple Locations, Kazakhstan
Unnamed facility
Multiple Locations, Kyrgyzstan
Unnamed facility
Multiple Locations, Lebanon
Unnamed facility
Multiple Locations, Russia
Unnamed facility
The clinical functional parameters of CTEPH patients will be assessed by evaluating the change in measures of 6MWD between initial and final visit
6MWD (6 Minutes Walking Distance)
Time frame: Up to 3 years
The clinical functional parameters of CTEPH patients will be assessed by evaluating the change in measures of WHO Functional Class between initial and final visit
WHO Functional class (World Health Organization Functional Class)
Time frame: Up to 3 years
The haemodynamics parameters of CTEPH patients will be assessed by evaluating the change in measures of PVR between initial and final visit
PVR (Pulmonary Vascular Resistance)
Time frame: Up to 3 years
The haemodynamics parameters of CTEPH patients will be assessed by evaluating the change in measures of Cardiac Index (CI) between initial and final visit
CI (Cardiac Index)
Time frame: Up to 3 years
The haemodynamics parameters of CTEPH patients will be assessed by evaluating the change in measures of mPAP between initial and final visit
mPAP (mean Pulmonary Arterial Pressure)
Time frame: Up to 3 years
Eligibility for PEA
At inclusion, information will be collected for each patient regarding their eligibility for PEA. If eligible, details about the PEA will be recorded; if not eligible, further information will be collected to understand why the patient was not eligible.
Time frame: Up to 3 years
Rate of recurrent to persistent subtypes after Pulmonary Endarterectomy
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Multiple Locations, Saudi Arabia
Unnamed facility
Multiple Locations, Turkey (Türkiye)
Not yet assessable/Recurrent/Residual
Time frame: Up to 3 years
Time span between onset of symptoms and CTEPH diagnosis
Time frame: Up to 3 years
Usage of diagnostic tools of CTEPH patients (Y/N)
Time frame: Up to 3 years
Rate of Pulmonary Hypertension treatments prior to CTEPH diagnosis, at the time of CTEPH diagnosis and at the time of first visit
Time frame: Up to 3 years
Treatment duration with Pulmonary Hypertension treatments prior to CTEPH diagnosis, at the time of CTEPH diagnosis and at the time of first visit
Time frame: Up to 3 years
Changes in CTEPH treatment during the study period
Time frame: Up to 3 years
Number of patients eligible for Pulmonary endarterectomy
Time frame: Up to 3 years
NT-proBNP (N-terminal Propeptide Brain Natriuretic Peptide) levels
Time frame: Up to 3 years
Mortality due to CTEPH and CTEPH related complications
Time frame: Up to 3 years
Number of healthcare professional visits due to CTEPH and CTEPH related complications
Time frame: Up to 3 years
The total number of days of hospitalization due to CTEPH and CTEPH related complications
Time frame: Up to 3 years
Number of patients eligible for Balloon Pulmonary Angioplasty
Time frame: Up to 3 years