Identifying Barriers and Strategies to Support Self-efficacy for Medication Adherence With Text Messaging

Vanderbilt University70 enrolled

Overview

The investigators will explore barriers to improving self-efficacy, or the ability to feel in control of their disease, and medication adherence with text messaging through surveys and interviews with adolescents and adults with SCD cared for at the Vanderbilt Meharry Center of Excellence (VMCE) in Sickle Cell Disease (SCD). The investigators will identify preferences to improve and sustain adherence to daily medication through selection of investigator-proposed or patient-generated text messaging strategies. Finally, the investigators will fill in the literature gaps by describing barriers to self-efficacy and medication adherence among adults with SCD as well as adolescents with SCD who are transitioning to adult care.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Sickle Cell Disease

Interventions

Interviews and SurveysOTHER

The investigators will perform semi-structured interviews and surveys on this cohort

Eligibility

Medical Language ↔ Plain English

Inclusion Criteria: 1. Receiving care at the VUMC/Matthew Walker clinic 2. Diagnosed with SCD, asthma, or both 3. Currently taking daily medications for SCD, such as hydroxyurea, asthma, or both 4. Having access to a mobile telephone and/or computer 5. Age 12-70 years Exclusion Criteria: 1\. Unable to perform interviews or surveys

Outcomes

Primary Outcomes

Number of patients with barriers to medication adherence

High cost, forgetting, side effects, access to medications

Time frame: 1 year

Secondary Outcomes

Number of patients that prefer a tailored text messaging technological solution