The main objective of register-SAFETIM is to assess the impact of the transition from pediatric to adult cystic fibrosis care center on changes in lung function and nutritional status of patients. This is a multicenter, observational, longitudinal, with analysis of the French national registry data of patients with cystic fibrosis. Our study will assess the clinical features of adolescent patients with cystic fibrosis during the transition from pediatric care to adult care. It will explore factors associated with the impact of the transition on the clinical course of adolescent patients (respiratory and nutritional functions).
Study Type
OBSERVATIONAL
Enrollment
300
Pôle Information Médicale, Evaluation, Recherche 162 avenue Lacassagne - Bâtiment A
Lyon, Auvergne-Rhône-Alpes, France
RECRUITINGChanges in FEV (FEV is the slope expressed in percentage of the predicted value).
Time frame: Two years
Body Mass Index (BMI)
Time frame: Two years
Pseudomonas aeruginosa colonization
Time frame: Two years
External pancreatic insufficiency
Time frame: Two years
Diabetes
Time frame: Two years
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