COPD Patient-Powered Research Network

COPD Foundation75,000 enrolled

Overview

The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share their heath information over several years and participate in research. The COPD PPRN has built an online platform to allow volunteers to enroll electronically, complete surveys, be contacted about studies they qualify for and become connected to COPD resources. The goal of the registry is to speed research to find better treatments for COPD and ultimately a cure.

Study Type

OBSERVATIONAL

Enrollment

75,000

Conditions

Chronic Obstructive Pulmonary Disorder Chronic Obstructive Lung Disease Emphysema Chronic Bronchitis

Interventions

Eligibility

Sex: ALLMin age: 18 YearsHealthy volunteers:

Medical Language ↔ Plain English

Inclusion Criteria: * 18 years or older that says yes to one of the following: * COPD diagnosis * Current or former smoker * Family history of respiratory disease * Symptomatic of respiratory disease Exclusion Criteria: * Non-English speaking

Outcomes

Primary Outcomes

Patient Reported Outcome Measurement Information System-29 (PROMIS-29)

Time frame: 15 years

COPD Assessment Test (CAT)

Time frame: 15 years

Modified Medical Research Council (MMRC) Dyspnea Scale

Time frame: 15 years

Charlson Comorbidity Index (CCI)

Time frame: 15 years

Data from ClinicalTrials.gov

This platform is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional.

COPD Patient-Powered Research Network

Overview

Conditions

Interventions

Eligibility

Locations (1)

Outcomes

Primary Outcomes

Central Contacts