Elaboration of a Multi-dimensional Indicator of Quality in Palliative Care

Assistance Publique - Hôpitaux de Paris560 enrolled

Overview

The purpose of this study is to elaborate a multi-dimensional indicator of the quality in palliative care for patients of end-of-life. The study will, as secondary objectives: * elaborate in a standard manner one set of indicators of organization and inner working of a palliative care setting. * compare according to these indicators, the qualities of 3 types of palliative care: palliative care unit in hospitals, specified identified bed for palliative care patients and non-specified bed. * explore the relationship between organizational aspects and results in term of burden.

A multicentric study aims on quality of palliative care and will be conducted in three types of 7 palliative care settings: two hospices, two hospital-based palliative care units and three medical units where a mobile palliative care team intervenes.

Study Type

OBSERVATIONAL

Enrollment

560

Conditions

Terminal Illness End of Life

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: * Aged ≥ 18 years. * Patient with serious progressive illness and in terminal phase (life expectancy \< 3 months): OMS stage is 3 or 4, regardless of etiology. * Patient informed their diagnosis or not. * Hospitalized at the moment of inclusion in one of the following care settings: palliative care unit, identified bed or non-identified bed in a care department of short stay. * No-oppose to participate to the study, by patients, their families or trusted person. Exclusion Criteria: * Patient has difficulties in reading, writing or understanding french language, also their family. * Hospitalization in the palliative care setting \< 48 hours.

Outcomes

Primary Outcomes

Questionnaire for patients

A questionnaire has been elaborated beforehand by the study will be answered by patients in order to evaluate quality such as reliability, dimensionality and validity against criterion.

Time frame: From date of enrollment until the date of first documented leaving from hospital or date of death, whichever came first, up to 2 years

Indicator for medical files

The indicators have been defined by the study, in order to evaluate quality of medical files, such as completeness and discriminatory capacity.

Time frame: At enrollment

Indicator for caregivers

In order to evaluate quality such as reliability and dimensionality, a questionnaire will be answered by caregivers: \- the Nursing Stress Scale (NSS).

Time frame: From date of enrollment until the date of receiving questionnaire returned by caregiver, up to 2 years

Questionnaire for families

A questionnaire has been elaborated, will be answered by patients' families.

Time frame: From date of enrollment until the date of receiving questionnaire sent by family, up to 2 years