Costs of Care and Adherence to Treatment for Cystic Fibrosis

Hospices Civils de Lyon500 enrolled

Overview

Evolution of medical care for patients with cystic fibrosis appeared in recent years: prolongation of life expectancy with consequently increased comorbidities and the use of lung transplantation, systematic neonatal screening of new born since 2002, prescription of expensive new molecules or new presentation. This evolution justifies to realize an update of statistics of costs of care and to assess adherence to treatment

Study Type

OBSERVATIONAL

Enrollment

500

Conditions

Cystic Fibrosis

Eligibility

Sex: ALLMax age: 99 Years

Medical Language ↔ Plain English

Inclusion Criteria: * Patients with cystic fibrosis, * Followed by one of the cystic fibrosis center of the Rhône-Alpes region (pediatric and adult of Lyon and Grenoble) * Affiliated to the general scheme of health insurance, * And domiciled in the Rhône-Alpes region. Exclusion Criteria: * Transplanted patients

Locations (1)

Hospices civils de Lyon, centre hospitalier lyon Sud

Pierre-Bénite, France

Outcomes

Primary Outcomes

treatment cost

Time frame: 12 months

Secondary Outcomes

adherence rate for chronic treatment

Time frame: 12 months

Data from ClinicalTrials.gov

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