ID Of Prognostic Factors In Mycosis Fungoides/Sezary Syndrome

Stanford University2,000 enrolled

Overview

The purpose of the study is to develop a prognostic index model for the rare disease of mycosis fungoides and sezary syndrome. This will be done by collecting standardized clinical data at various institutions. The investigators hope this will enable the identification of low- and high-risk groups for survival in order to improve patient care and outcome.

Study Type

OBSERVATIONAL

Enrollment

2,000

Conditions

Mycosis Fungoides Non-Hodgkin's Lymphoma

Eligibility

Sex: ALL

Medical Language ↔ Plain English

Inclusion Criteria * Diagnosis of advanced stage MF or SS (Stages IIB - IVB) within 6 months of presentation to the participating center * Patients that are expected to have care administered at the participating center or jointly with referring physician(s) where follow-up data would be available Exclusion Criteria * Patients diagnosed with early stage MF/SS (Stages IA-IIA) before progressing to advanced stage * Patients diagnosed with advanced MF/SS more than 6 months prior to initial presentation to the participating center * Exclude one-time consultation type of new patients.

Locations (13)

City of Hope

Duarte, California, United States

RECRUITING

Stanford University, School of Medicine

Palo Alto, California, United States

Outcomes

Primary Outcomes

Overall survival (OS)

Time frame: date of diagnosis to death from any cause, up to two years

Central Contacts

Tatiana Neal

CONTACT

650-709-7838 tatianan@stanford.edu

Data from ClinicalTrials.gov

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