The study aims to validate a vulvar scarring grading scale for lichen sclerosus (LS).
Utilizing the vulvar disorders registry, protocol #STU00001056, the research team seeks to analyze the medical record data, including standard of care vulvar photographs, of the vulvar LS population at Northwestern Memorial Hospital (NMH) and the outpatient clinics of Northwestern Medicine (NM). These photographs will be used to develop a vulvar scarring grading scale for LS. The objective measurement of scarring severity in LS deidentified standard-of-care patient photographs will be correlated with clinical examination findings to assess validity of the grading scale. The development of an objective and standardized grading scale will assist with the longitudinal evaluation of individual disease, assessment of impact of therapy on scarring, and inform treatment modifications. Further, objective grading of scarring would also provide the opportunity to search for potential correlation between QoL scores and severity of clinical states in scarring dermatoses.
Study Type
OBSERVATIONAL
Enrollment
30
Photos will be taken of the vulvar lichen sclerosus lesions.
Northwestern University Feinberg School of Medicine, Department of Dermatology
Chicago, Illinois, United States
Scarring severity grading scale for vulvar lichen sclerosus
Time frame: one year
Correlation of severity of vulvar LS scarring, as documented at time of clinical examination and compared to scores on the LS grading scale, with the patient quality of life at the time of examination.
Time frame: one year
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