Analysis of Clinical and Molecular Genetic Data Influencing the Evolution and Response to Therapy of ADPKD Patients (Autosomal Dominant Polycystic Kidney Disease)

University Hospital, Brest4,000 enrolled

Overview

Genkyst is a regional cohort involving up to nephrologists working in private and public nephrology centers in the West of France. It registers clinical and molecular genetic data of all consenting patients with ADPKD from this area.

Study Type

OBSERVATIONAL

Enrollment

4,000

Conditions

Autosomal Dominant Polycystic Kidney Disease

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: * ADPKD patients followed in Nephrology centers in the West of France * Age \>17 Exclusion Criteria: * None

Locations (26)

AUB Brest

Brest, France, France

Outcomes

Primary Outcomes

Clinical description of the patient

Time frame: at the inclusion day

Secondary Outcomes

Genetic analysis

Time frame: at the inclusion day

Central Contacts

Yannick Le Meur, MD PhD

CONTACT

yannick.lemeur@chu-brest.fr

Data from ClinicalTrials.gov

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