The German Pediatric Hemophilia Research Database will collect data on the prophylactic and therapeutic use of factor concentrates, complications, outcome measures (joint scores, QoL) and living circumstances in newly diagnosed children with hemophilia.
Study Type
OBSERVATIONAL
Enrollment
800
Goethe University
Frankfurt am Main, Hesse, Germany
RECRUITINGNumber of patients with antibody developement to exogenous clotting factors (>0.5 BU)
Blood Test: measurement in Bethesda Units, positive according to local standards, for most labs \> 0.5 BU
Time frame: 5 years
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