A Longitudinal Study of Function and Participation in Life Activities of Patients with Developmental Disabilities
Developmental Disabilities (DD) is defined as a group of neurodevelopmental issues, leading to significant lag in one or more areas (e.g. cognition, speech, motor, self-care and psychosocial function) for various reasons. On the basis of International Classification of Functioning, Disability and Health -Children and Youth Version (ICF-CY) framework, problems related to Developmental Disabilities further limit activities of daily living (ADL) and participation of patients.
Study Type
OBSERVATIONAL
Enrollment
800
Chang Gung Memorial Hospital
Taoyuan, Taiwan
RECRUITINGChange from baseline of general developmental for Healthy child and patients with Developmental Disabilities in 6 months and 12 months
Comprehensive Developmental Inventory for Infants and Toddlers
Time frame: baseline, 6 months, 12 months
Change from baseline of body function & structures in 6 months and 12 months
Bruininks- Oseretsky Test of Motor Proficiency II
Time frame: baseline, 6 months, 12 months
Change from baseline of upper extremity function & structures in 6 months and 12 months
Quality of upper extremity skills test
Time frame: baseline, 6 months, 12 months
Change from baseline of lower extremity function & structures in 6 months and 12 months
Pediatric Balance Scale
Time frame: baseline, 6 months, 12 months
Change from baseline of Sensory and Perceptual function in 6 months and 12 months
Sensory Profile
Time frame: baseline, 6 months, 12 months
Change from baseline of activities in 6 months and 12 months
Functional Independence Measure for Children
Time frame: baseline, 6 months, 12 months
Change from baseline of Participation in 6 months and 12 months
Children Assessment of Participation and Enjoyment, Preferences for Activity of Children
Time frame: baseline, 6 months, 12 months
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Change from baseline of Quality of Life in 6 months and 12 months
TNO-AZL Child Quality of Life Questionnaire
Time frame: baseline, 6 months, 12 months
Change from baseline of Personal & Environment factor in 6 months and 12 months
Parenting Stress Index,
Time frame: baseline, 6 months, 12 months
Change from baseline of Rehabilitation & community service factor in 6 months and 12 months
Measure of Processes of Care
Time frame: baseline, 6 months, 12 months