Scoliosis Survey to Development Treatment Decision Tool

Mayo Clinic5,000 enrolled

Overview

This is a survey to help understand the influences related to the decision for Adolescent Idiopathic Scoliosis treatment (observation vs. bracing vs. surgery). The investigator then plans to create a decision aid to help families when making a decision about the treatment choice being presented to them.

This survey is designed to help understand the factors that families consider to help make treatment decisions related to Adolescent Idiopathic Scoliosis (AIS). The surveys will then be used to help create a shared decision making tool to help families better understand the treatment options and optimize clinical conversations surrounding AIS treatment.

Study Type

OBSERVATIONAL

Enrollment

5,000

Conditions

Scoliosis; Adolescence

Interventions

Survey for Patients Treated for Scoliosis and ther FamiliesOTHER

Your Scoliosis Journey: A Survey for Patients Treated for Scoliosis and ther Families

Eligibility

Sex: ALLMin age: 13 Years

Medical Language ↔ Plain English

Inclusion Criteria: * Subject (and/or parent of subject) who has previously been treated for Adolescent Idiopathic Scoliosis (AIS) Exclusion Criteria: * Age less than or equal to 12 years

Locations (1)

Mayo Clinic

Rochester, Minnesota, United States

RECRUITING

Outcomes

Primary Outcomes

Number of subjects who completed the survey

Time frame: Baseline, approximately 3 years

Central Contacts

Damian Paulson

CONTACT

507-293-6713 paulson.damian@mayo.edu

Data from ClinicalTrials.gov

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