An Exploratory Study of Caregiver Burden Among Family Caregivers of Patients With Cancer

Saint John's Cancer Institute49 enrolled

Overview

This study will look at caregiver burden and the coping behavior of caregivers of patients with cancer. Through this study, the investigators will identify the relationship between cognitive dysfunction (measured as a proxy rating by the caregiver), resilience, social support, cognitive appraisal, coping behavior, and caregiver burden, anxiety, and depression among family caregivers of patients with cancer.

The goal of this study is to explore caregiver burden and the coping behavior of caregivers of patients with cancer. It has been documented that non-professional caregivers and long-term care providers to patients with cancer receive little preparation, information, or support to perform their vital role. Through this study, the investigators will identify the relationship between cognitive dysfunction, resilience, social support, cognitive appraisal, coping behavior, and caregiver burden, anxiety, and depression among family caregivers of patients with cancer. The findings of this study will direct future intervention studies to reduce caregiver burden and improve outcomes for the many individuals caring for family members with cancer.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Caregivers Cancer

Interventions

QuestionnaireOTHER

Participants will complete paper and pencil or electronic questionnaires at the cancer center or in the privacy of their own homes.

Eligibility

Sex: ALLMin age: 18 YearsHealthy volunteers:

Medical Language ↔ Plain English

Inclusion Criteria: * Age ≥ 18 years * Self-identified primary caregiver of patients with cancer * Co-residence with the patient * Providing a minimum of 4 hours of direct care for at least 3 days per week * Able to speak, read, and understand English * Willing to participate in completion of surveys Exclusion Criteria: * Professional or paid caregivers

Locations (4)

Providence Saint Joseph Medical Center

Burbank, California, United States

Providence Holy Cross Medical Center

Mission Hills, California, United States

John Wayne Cancer Institute at Providence Saint John's Health Center

Santa Monica, California, United States

EndBrainCancer Initiative/Chris Elliott Fund

Redmond, Washington, United States

Outcomes

Primary Outcomes

Changes in Caregiver Burden Score [Caregiver Reaction Assessment (CRA)]

Relation between caregiver burden subscale scores and caregiver resilience, social support, and coping

Time frame: 1 year

Secondary Outcomes

Changes in Anxiety and Depression Score [Hospital Anxiety and Depression Scale (HADS)]

Relation between caregiver anxiety and depression score and caregiver resilience, social support, and coping

Time frame: 1 year

Data from ClinicalTrials.gov

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